The phone rang after the text, my friend said don't worry they would bring their jeep and thankfully in OBX you can drive on the beach So, we have been feeling the progression of ALS, mostly with Bert's walking and spasticity but also with weakness as well. Bert and I got him shortly after we were married; he lived a long happy life with us. It was hard to find a positive this time but I am proud of myself for reaching out and allowing the people who I love and who love us to help me find the positive. The past couple weeks I feel like we have been on a non-stop roller coaster and I do not think it is fun. I am grateful for our army, I feel empowered and energized. Strangers from fb who answer my questions or send out their virtual support and prayers are there for us. I don't like to see my husband upset or hurt, and there is nothing I can do to take this away!
We are sad, we miss him and Bert hurts the most. Our BFFs from Florida always make everything better, when we are with them it feels "normal" and we can truly relax. I don't like that there are no answers and I don't like the decisions that have to be made. Strangers from fb who answer my questions or send out their virtual support and prayers are there for us. And then there is that darn perspective. So, what is the positive you ask? I will ride this roller coaster and I will learn to raise my arms high and learn to love the thrill He was Bert's dog The positive is our army. Well you could stay in that detectable disturbance stage for a while, that is Bert Progression happens; we know it is going to, that doesn't change the disappointment of it when it does. So, we are going to push on, we will always find the positive, we will go to our appointment on Tuesday at UMass and face our fears, we will find a way around what is lost and move on to something new. The people who love us. In ALS they measure your progression with a score. Our family is our front line they are there to listen, to help clean, to run kids, mow, fix cars, help get handicap vans, hold hands, cheerlead, cook, manage fb pages, manage our diets, help us orgnaize: It was hard to find a positive this time but I am proud of myself for reaching out and allowing the people who I love and who love us to help me find the positive. The past couple weeks I feel like we have been on a non-stop roller coaster and I do not think it is fun. The love, hope, and prayers that all the people who love and care about us provide. Either way this decline has put up another hurdle and challenged our spirits and positivity. He gave me a little pep talk and made me laugh, by the time I hung up with him I was feeling positive that we would have fun like always and that ALS was not going to mess up the vacation, I knew my friends would make it ok, Bert heard me talking on the phone and his mood perked up after as well. I will work hard to keep perspective and be the positive light for my family. I ride only when I have to with Sophia when she is begging to ride with Mommy. I am grateful for our army, I feel empowered and energized. Bert and I got him shortly after we were married; he lived a long happy life with us. For us this disease has been slow I guess, it's one of those things I think you can never really compare one person with ALS to the next because everyone is so different and really progression is progression and all the symptoms are bad
Video about wweee:
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